Communication
Cultural Health Care Issues
Decision Support
General
Patient, Family & Consumer Sites
Patient-Centered Care
Safety Education
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Communication
This video, created as part of the Robert Wood Johnson Foundation project "Speaking Together for Better Care," features hospitals where medically trained interpreter services are helping to improve safety and clinical outcomes for patients who speak or understand little English. The video also provides an introduction to the Speaking Together project and its aim to improve health care language services and reduce health care disparities due to language barriers. The video is accessible free online, along with a guide to using the video.
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Researchers at the Johns Hopkins Bloomberg School of Public Health are working to help educate physicians in how to disclose medical errors to patients and their families. They've developed a 25-minute training video, “Removing Insult from Injury: Disclosing Adverse Events,” available for purchase on their website. The video features short vignettes of doctors talking with patients to illustrate the best methods for disclosing medical errors. The video can be a helpful tool for practicing physicians and physicians in training, risk managers, and health care organizations.
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The focus of the Institute for Healthcare Communication is to enhance effective communication between clinicians and patients through three major activities: education, research, and advocacy. This website features case studies and annotated bibliographies on communication topics such as "difficult" clinician-patient relationships, activating patients, and enhancing health outcomes. Educational opportunities and products to help clinicians develop their communication skills are also available for a fee.
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Cultural Health Care Issues
The HealthTranslations website, developed by the Missouri Hospital Association, provides numerous language assistance resources focused on cultural competence and disparities, translation services, policies and guidelines for language and interpretation services, and a Rural Health Disparities Guide, among other resources.
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Decision Support
UpToDate provides comprehensive evidence-based clinical information on a wide variety of topics. Patients can use information on the website to learn about a medical condition (including other resources for information and support) and understand management and treatment options to help them have discussions with providers that support shared decisions about their care.
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General
Medically Induced Trauma Support Services (MITSS) offers resources for both patients and clinicians to support, educate, train and offer assistance to individuals affected by medically induced trauma. The MITSS mission is to promote open and honest communication and to provide support services to ALL individuals who have been affected by unexpected complications due to medical and/or surgical procedures, medical errors or systems error, for example.
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Patient, Family & Consumer Sites
This consumer website, a resource provided by the Commonwealth of Massachusetts Health Care Quality and Cost Council, provides comparative cost and quality information about medical procedures performed at Massachusetts hospitals and outpatient facilities. The goal of the website is to improve health care quality through transparency and comparative quality information.
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The Agency for Healthcare Research and Quality (AHRQ) and Advertising Council has launched a national advertising campaign to encourage patients to become more active in their health care by asking questions. The “Questions Are the Answer” campaign directs health care consumers to call (800) 931-AHRQ or visit the website to obtain tips on how to help prevent medical mistakes and become partners in their health care. The website includes a “Question Builder” tool that allows consumers to generate a customized list of questions they can bring when they meet with their health care providers.
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The Quality Improvement Toolkit on the Cystic Fibrosis Foundation's website provides information and templates to initiate patient and family involvement in care centers. These materials provide a starting point for setting up advisory and support groups, improving quality at care centers and other methods of involvement.
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Ask Me 3 is a website for both providers and patients that promotes three simple but essential questions that patients should ask their providers in every health care interaction. The Ask Me 3 program is sponsored by the Partnership for Clear Communications and provides information and practical strategies for both patients and providers to address health literacy issues.
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The “How’s Your Health” tool allows patients to explore their health care needs and communicate more effectively with their providers. Get a two-part "10-Minute Health Checkup": 1) assess health, habits, knowledge about disease prevention, and satisfaction with health care providers; 2) use the individualized "action form" to share with a doctor to manage your health and keep track of progress. There is also a section to privately share and learn problem-solving strategies with others online.
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Voice4Patients is an organization devoted to empowering patients to be their own health care advocates in order to address patient safety concerns and medical errors. The organization advocates building partnerships between patients and providers and provides information and tools to strengthen consumer skills.
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The site offers evidence-based information about treatment options, interviews with patients, aids to guide decision making, and other tools on a variety of conditions.
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The Institute for Family-Centered Care, a non-profit organization, provides leadership to advance the understanding and practice of patient- and family-centered care. By promoting collaborative, empowering relationships between providers and consumers, the Institute facilitates patient- and family-centered change in all settings where individuals and families receive care and support. Guidance for creating patient and family advisory councils, supporting family participation on committees and task forces (e.g., patient safety, pain management, quality improvement, and patient and family education), collaborative design planning, and involving patients and families in staff orientation and the education of students and trainees is available from the Institute.
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Patient-Centered Care
The Center promotes different methods to deliver the right information to the right patient at the right time. The Center publishes white papers on different aspects of providing evidence-based information to patients and families, sponsors conferences, and offers a membership program to increase implementation.
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The Center for Health Design (CHD) is a leading nonprofit organization dedicated to research, education, and advocacy in the field of health care facility design. CHD provides technical assistance, supporting health care and design professionals all over the world in their quest to improve the quality of health care through evidence-based building design.
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The Agency for Healthcare Research and Quality has developed survey tools called CAHPS® surveys (Consumer Assessment of Healthcare Providers and Systems) to enable consumers to identify the best health plans, facilities, and services for their needs. There is also a hospital survey component that addresses patient feedback regarding their hospital stay, including patient experience of environmental conditions (i.e., cleanliness), communication (i.e., explanation of side effects), pain management, and other characteristics.
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Safety Education
The MITSS Story DVD, produced by the Medically Induced Trauma Support Services, tells the story of a physician and a patient who share an adverse event and presents their journey toward healing. The 16-minute DVD is intended to stimulate discussion in any health care organization about the cultural and institutional barriers that exist following adverse medical events around disclosure, apology, and support. A facilitator's guide, discussion questions, and suggested readings are also featured. [A suggested donation is requested to order the DVD.]
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